For over four year I have done…
- Physical Therapy
- Occupational Therapy
- Mirror Therapy
- Sympathetic Therapy
- Massage Therapy
- Fluido Therapy
- TENS unit
- Acupuncture
- Cupping
- An AFO
- Ankle braces
- Night splints
- Stretching
- Chiropractor
- Contrast baths
- Botox Injections
Spent a small fortune and countless hours in appointments, driving to and from appointments and performing the exercises and stretches given to me at home. Although I have come a long way from being paralyzed, it is not enough.
- Sprained ankles
- Broken toes
- Fractured foot
- Foot ulcers
These are the big ticket items, but there is a laundry list of smaller ailments as well, but I won’t bore you. I have worked with Neurological Rehabilitation doctors, Podiatrists, Orthotists and countless other medical professionals as well.
Many of my daily struggles are less visible:
- Foot/ankle contortions which cause trips, falls, sprained ankles
- Restless sleep with night splints and my foot twisting inward from spasms
- Spraining my ankle by rolling over in bed because of the resistance of a light sheet
- Swelling of my ankle after gently kicking my legs in a pool while sitting on the edge
- Broken or bruised toes from putting shoes on, rubbing in shoes or stepping on them with the same foot to which they are attached
- Overwhelming stress about being injured and set back
- Constantly watching nothing but the ground while I walk and missing out on everything that is around me
- Inability to be able to be fully present and watch what my daughter is doing without being completely immobile
- Fake fatigue to allow my husband and daughter to hike without guilt of leaving me behind
- Inability walk on grass or gravel without ankle brace and cane or person for support
- Pretend that I am okay and happy, not stressed or hurting.
It’s too much. I refuse to live like this forever because it does not feel like a life worth living. I have made a decision that will help me move forward. Most will not understand because they aren’t living in this body. Soon, but not soon enough, I will take on new challenges. For now it is hope and it’s been a while since I have felt hopeful. Tis my light at the end of the tunnel.
Ayesha this is so lovely! All the strength to you and family. It isn’t easy but you are setting up a great example for others to emulate.
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Thank you so much! I appreciate your kind words.
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